I have noticed more side effects from the prednisone this week. The high energy I described before is no longer happening. I’m feeling more normal regarding my level of energy. Still have to rest more (as in catch my breath) because of the amount of fluid I’m retaining and how it’s slowing me down. I’m still sleeping about four to four and a half hours a night, although I was able to sleep longer some nights on the trip. I typically notice my ankles swell for a few days when I travel and that happened on this trip, too, but my face also swelled up along with them! It’s still pretty puffy. My shortness of breath was a definite and significant issue for trying to hike around…I couldn’t go very far before I was working at getting my breath. I also found that in the evenings when we were settling in to watch a movie or something that it was quite difficult for me to cool down to a normal temperature. I eventually found that putting some ice cubes in a paper towel and rubbing them over my face and neck for 10 minutes or so did the trick best, then I was ok for the rest of the evening. I was showering or taking baths in the evening after all that sweating and hiking so I’m guessing it’s an issue with regulating body temp from the heat of the bathing. Another side effect of prednisone is that your body can redistribute body fat or add it in unusual ways….especially around the neck and face (they call it the steroid “moonface”) and a “buffalo hump” on the back of the neck, as well as in your midsection and other “odd” spots in ways that aren’t typical. In the past I’ve had fairly minor issues with these, but this time it’s more pronounced. Your appetite increases, too, which obviously adds to the problem. I was on the same oral dose this round but for a longer period of time, and I had 2 more injections of steroid than I’ve ever had, so I guess it shouldn’t be surprising. It was and is all worth it, though, considering that I’ve regained some hearing. I will need to think about how to handle future episodes and whether the benefit outweighs the potential risks. There are a lot of things that can still happen with side effects, and even though I have begun to taper off the drug, I still have a couple of months to go before I’m totally off of it. I’ve read that even after you stop taking steroids, some people can still have some in their systems for up to a year. While you are taking prednisone, your adrenal glands atrophy to some extent, and the purpose of the taper is to give them a chance to start functioning properly and do the job they are supposed to do. Sometimes there are issues getting them going again and that can lead to problems, as well. Maybe I’m noticing more side effects due to the tapering and it’s just part of the process of getting those glands working again on their own. They had a month to atrophy, so it might take some time to start going again. I’m mentally doing okay with it all. It’s weird seeing your face change like that, but I understand the what and the why of it, so I’m not freaking out. I’m feeling thankful, actually, that I’m not experiencing more of the possible side effects. There are a lot of them and some can be quite serious. I think it’s a good time to remind myself that this body is just the house that I live in. I can do some “repairs” and “remodeling” when it’s practical to do so! 🙂 The things that matter aren’t affected by these minor inconveniences.
Monthly Archives: June 2012
Back from vacation…
Sorry to have “dropped off the face of the earth” here. We went on vacation and I had hoped to blog from my Nook. It didn’t work out. Chet and I spent a few days together up on the North Shore of Minnesota/Lake Superior. We did some hiking, bird watching (very few to be seen) and spent a day up in Canada. We checked out some fun new restaurants and enjoyed some beautiful scenery and time away together. Then we were joined by our close friends (and frequent travel buddies!) and spent more time visiting state parks, hiking, canoeing in the Boundary Water Canoe Area (yes, I tipped the canoe and we took a little unexpected dip in some pristine Canadian waters!) , riding ATVs, and just generally enjoying some down time from our very busy lives! We spent our last day/night in Duluth and toured the Glensheen Estate and stayed in a very cool hotel with a view of the aerial lift bridge. It’s pretty spectacular all lit up at night! As always, communication is something on my mind, even on vacation. The day we rode ATVs (my first time!) we stopped for a short break along the trail and got off and stretched our legs. Chet was taking a couple of photographs and I asked him to take one of me on the machine. I just wanted him to snap a shot when I was back on so I’d have a pic of that! He said ok, but I thought it was odd that he didn’t take one right away. I figured he’d just do it later. When we finished riding I specifically asked him to take the picture again since he still hadn’t done it. Didn’t think anymore about it until the next morning. We were having coffee on the deck and he was telling me about how he had been working at taking photos of me along the trail but it was pretty difficult to ride and snap photos at the same time. Chet was behind me in the line of ATVs so he was taking pics of me riding from the back. I had no idea this was going on! I wasn’t even sure if I wanted to see those 🙂 Turns out that when I asked him to take a picture of me on the machine, he thought I wanted “action” shots of me riding the thing! Once we figured out what had happened, he told me that if there’s ever a time that I ask him to do something and then think he behaves in a way that is “odd” or “unexpected” that should be a good clue that there might be some miscommunication going on and we should clarify. I agreed. That is a good rule of thumb. I also added one of my own…..if there’s ever I time that he thinks that I asked him to photograph me from the backside, that should be a good clue that there might be some miscommunication going on and we should clarify! With the exception of a possible before and after weight loss photo, there is NEVER going to be a time that I will ASK him to photograph me from that view!!!!! LOL
Shock and Awe…
Shock and awe pretty much sums up how I feel right now. I just got home from an afternoon at the doctor’s and for the first time in 12 years there has actually been improvement in my hearing!
I’ve noticed over the last couple of days that my own voice sounds a little louder than it did and that I seem to be following conversations a little better than I was earlier last week. I also noticed what seemed to be a slight improvement at church yesterday. I really wasn’t positive – it’s so subjective and I wasn’t sure if I was just getting used to things, or maybe my hearing aids were being sporadic. I was pretty sure there was some improvement, I just wouldn’t let myself count on it until I had a hearing test. The news was really great today. I’ve actually regained nearly 25 decibels in some tones! That means that some of what I lost is back to within a couple of decibels of what it was before this latest episode! I’ve also noticed an improvement in the distortion. Voices still sound distorted, but there is some human quality to what I’m hearing again and I can sometimes distinguish whose voice I’m listening to. I do still have losses in some tones from this episode, but what I have regained is definitely helping me.
I had to make some decisions today about how to move forward from this point. Prior to this appointment, I’d already had 3 steroid injections in my eardrum, and that is the maximum that they generally use. There is some risk that the hole created in my eardrum by the needle won’t heal. That risk increases the longer it’s there (they use the same hole for each injection, so it’s been open for nearly a month now). He did say they can surgically repair that when necessary. (Interesting side note: I mentioned that I’m having a lot of problems with feedback with my hearing aids and he said that the hole in the eardrum is probably the cause of that! I had no idea!) There are also serious side effects that become more of a risk the longer you are on high doses of steroids. We had to weigh the benefits and the risks before we decided how to proceed today. The doctor basically left it up to me. I decided that it was worth one more injection …something is working this time and even small improvements make a big difference for me and my ability to function at this point. We’re outside of normal protocol here and there’s no way to know if I will have any additional benefit. He also told me that I need to be thinking about what course of action I want to pursue when the next episode occurs. Again, I need to weigh benefits vs. risk. The assumption is that these episodes will continue and the next one or two will likely take me into the profoundly deaf range. I’ll be thinking about that, researching it, and praying about it. Right now my feeling is why not try? I guess it could depend on whether the next episode is in 2 years or 2 weeks. This is new territory for me. I asked if it’s typical for the improvement when it happens to be stable or if there’s a chance that as soon as we stop treatment it will be gone again. He said there is no way to know that. We’ll just have to wait and see.
I’m really almost in shock right now. I’m very very thankful to God for this blessing and give Him the praise and the glory for what has taken place. I’m thankful for His providence that has brought me to this doctor and for the medical knowledge and skill that he has. I’m also very thankful for the technology that is available that makes such a difference in my ability to function. I know that we only have these things because God has allowed it. I still don’t know what the future holds, but like the saying goes, I know who holds the future. I’m thankful for the results today. I’ll be thankful tomorrow, whatever tomorrow brings!
I also want to thank all of you from the bottom of my heart for your prayers and your continuing encouragement. I can’t tell you how much it means to me and how much difference it makes as I continue on this journey.
The Steroids…
Life can get pretty interesting when you’re taking high doses of steroids. In general, I’m pretty fortunate. I don’t have too many major side effects. My face is flushed most of the time and I’m sweating more than normal. I am retaining a lot of fluid and can tell it’s harder on my system to carry that around (I’m out of breath much more easily than normal.) The main thing I notice is that the steroids affect my sleep and energy. I mentioned that the first couple of weeks after all of this happened to me, I was very exhausted almost all the time. I think it was mostly due to the mental toll of all that was happening and the newness of it all. I think it might have taken some time for the drugs to build up in my system, but now I’m experiencing the opposite. I’m only able to sleep for about 4.5 hours a night, but that’s really all I feel like I need. It’s weird. I’ll fall asleep around 12 or 1am and then wake up again around 5 or so. If I can’t go back to sleep I’ll read or something and see if that makes me sleepy. Usually it doesn’t and after a while I’ll get up and start my day. If you know me at all, you know I’ve never been a morning person, but along with the lessened need for sleep I’m also having huge bursts of energy! Not just “feel like doing stuff” bursts, but really DRIVEN to do stuff bursts! It’s crazy. On Saturday I was obsessed with moving furniture around in my living room (by myself – I have multiple scratches and bruises to show for my aggressive efforts), throwing away an old couch that I hate and deep cleaning everything! I’m usually more of the mindset that males have stronger muscles and can do heavy lifting and moving with much less effort so the “normal me” is probably going to ask for help moving stuff, but this time ” I wanted it done and I wanted it done now and I’m going to get it done!!!!! – stop – breathe – ” I also felt the need on that same day to remove all of the drawers in my dresser and move the whole thing out from the wall, and dust and vacuum……and the same with my nightstand……changing sheets on beds and doing laundry…..My house is in great shape (today anyhow)! I figure if I’m in that mode I’d better take advantage of it. I’m not normally a person that feels the need to rearrange furniture too often! (or deep clean for that matter! lol) I would have thought after all of that physical effort and hard work that I would have been really tired that evening. Not so. I had to take a lot of short breaks while I was working to catch my breath and cool off, but at the end of the day I had just as much energy as the beginning and still wasn’t sleepy at all until 12am and still was rested enough after only a few hours! It’s that way from the time I wake up until I go to bed. I feel driven to find stuff that needs doing. I think I’ll take advantage of this and get as much done as I possibly can while I’m still on the drugs. Not sure how much longer that will be. I have a hearing test tomorrow at 1pm and then an appointment with the doctor. I’ll let you know how it goes.
On a different note, last night while I was reading my Bible I finished a book and sort of randomly decided to read Proverbs through. Here’s the thought that stood out boldly to me in light of all that is going on in my life and the things I’ve been talking about here on this blog:
Proverbs 2:1-5: My son, if you will receive my words and treasure my commandments within you, make your ear attentive to wisdom, incline your heart to understanding; for if you cry for discernment, lift your voice for understanding; if you seek her as silver and search for her as for hidden treasures; then you will discern the fear of the Lord and discover the knowledge of God.
I see this from a fresh perspective today and I couldn’t have come up with a thought that was more relevant to me right now than this one. I loved it and wanted to share!
The Grieving Part…
This is not how I’m feeling today, but I still want to write about the things I’ve experienced as they happened and the next thing that stands out in my mind is the grieving part. I don’t dwell on what I have lost. It does creep up on me once in a while. I have a sweet new little grandson (my first grandchild!) and at the time this hearing loss episode happened he was 3 weeks old. It occurred to me that I will never hear what his natural voice sounds like. I only teared up for a second because I also realized that he and I will be able to communicate somehow and I envisioned some grand adventure or game between the two of us where we might talk in “secret code” with each other (sign language?) or something else that makes it fun. Lord willing, I will be able to watch him grow up and be a part of his life, however that takes place.
What I am feeling the most sadness about is communicating with my husband. We generally touch base by phone during the day at some point. Sometimes it’s only a few minutes, sometimes longer when he has a break, but it’s one of the highlights of my day. It is so difficult to understand him on the phone now and his voice doesn’t sound the same. I can’t even tell it’s him unless I see the caller ID. The CapTel (captioning telephone) helps. At least we can communicate. But I am finding that it is not the perfect solution. There is a significant delay between what the caller says and what appears on my screen in captions, which takes some getting used to and often there are places where it just says (speaker breaking up) or (indistinguishable). Better than nothing, of course, but I still miss talking to him the way we used to. It’s not just the phone. Think about how many times you communicate with your spouse. There are so many just general practical every day things to say (“What do you want in your lunch?” “The phone’s for you”. “Where’s Cody?”). Then there’s the talking about things that matter, like what’s going on with the kids, or what can we do for this christian who is struggling, or just sharing what’s on your minds ….even in your most intimate moments together as husband and wife there are words to speak and it’s so hard not to be able to do that. That loss does make me cry when I think about it.
I mentioned in my last post that I really have only had 2 days that were “bad” or especially tough. I talked about the first one. The second one happened last Sunday. The high dose of prednisone that I am on keeps me awake at night. (I’m averaging about 4.5 hours of sleep these days.) That morning, I arrived at church feeling fine. I was trying to talk to someone a few rows ahead of me right before things got started and was “talking over the crowd” (ie being louder than I needed to) when suddenly Chet shushed me very firmly and told me I was being really loud! My perception at that time was that he was annoyed with me….it felt like I had done something “wrong” and he was irritated about it. It turned out that he was actually saving me from a very embarrassing situation. What I perceived as irritation was urgency on his part…the speaker had stepped up to the microphone and the audience was quieting down. I had no idea. I was mid-conversation and clearly going to continue at a very loud volume. I was moments away from everyone else being totally quiet and me continuing to speak at a high volume! He was saving me! (My hero!) I didn’t know that at the time, though, and that was the thing that started me on a weepy meltdown. I’m sure if it hadn’t been that, something else would have been the catalyst. I couldn’t keep myself together and had to leave for a few minutes and try to get my tears under control. After church, someone was speaking with me, and joked “You don’t have to yell, you know.” They were just trying to help and let me know in a joking way (I often handle things with laughter, too) but I was hanging on by a thread so I couldn’t really laugh about it at that moment. The rest of the day I felt weepy. We had what our church calls Flock Groups that night (a small group gathering) and it is set up differently (no microphone, lots of group participation, fewer people to sing so individuals are heard more) and it was very difficult. I couldn’t hear anything spoken and while I could understand some of the songs, I didn’t try to sing at all. I knew that I was only one wrong look or comment away from a total and very public meltdown. I have to say, encouragement is everything during those moments. I chose to isolate myself a bit from the group during the fellowship portion and a friend basically came and got me and told me to come sit down with her. She let me talk some of my feelings out and it really helped. Another friend visited with me, and even though we didn’t talk about any of this, she walked over to me later and just out of the blue gave me an extra hug. (I’m guessing she noticed along with everyone else my “barely holding it together face” during flocks!) Those things make such a difference. I think sometimes we feel that we might say the wrong thing so we are hesitant to talk to someone who is hurting or sometimes we think we need to have some kind of special wise words to share. Really, a hug or a squeeze or an “I love you” or a listening ear is all that’s necessary.
I imagined that the grief part of this would be similar to grieving a death and that has been true. The day I had a good cry over it all, it really surprised me just how painful it was. They were deep, hurting tears. More painful than I expected. When I lost my dad in a traffic accident a few years ago, I knew he was a christian and I knew that the scriptures say that for a christian the day of your death is better than the day of your birth. I knew that in the big picture this was actually a good thing for my dad. It still hurt to lose him, even with the right perspective on things. I know that in the big picture, losing my hearing is not really a bad thing. I think I have a good sense of perspective about that, but the loss does still hurt. I remember when my dad first died how much love and support there was, and I also remember that after a couple of weeks there was a distinct feeling that everyone else was getting on with their lives and back to normal (which they were and should have been) but for me it was as if it all just happened and nothing felt normal at all. I felt very disconnected from “normal.” I feel that way again here. It feels like the initial acknowledgment that something has happened is past and most people have moved on with normal life. Of course that makes perfect sense and is exactly how it should be. I still feel like something huge just happened to me and I don’t feel like life is normal yet at all. This is still something I’m thinking about and dealing with almost constantly. I believe this, too, is probably the way I should expect to feel at this point and I think that I need to allow myself a period of grieving the loss and that ultimately it will help me move forward in the positive way I want to.
Today has actually been a very good day. I’m feeling much better able to cope than on the days I described above. I’m thankful for the encouragement I have received and am receiving from all of you. I think most of us know it’s good to encourage others, but I don’t think we always realize just how much difference it can make for someone. Your words are making a very big difference for me. Thank you.
First Impressions…
Did you know that when you turn the key in the ignition to start your car, you rely on sound to know when the engine starts and it’s time to stop turning the key? I never would have thought of that, but now I have to estimate when to stop turning the key and try to figure out if I got it right and the engine is actually running. I pretty much have that down now, but it’s one example of the many ways that not hearing well affects your daily life.
I’m a person that prefers to record things chronologically, so today I want to share some of the moments over these first weeks that stand out in my mind in the order that they happened. The first weekend after this recent episode, we had a family dinner at home. We all were sitting around the table and, as always, there was much laughter. I couldn’t follow much of the conversation, and I realized that it just isn’t practical for every word to be repeated for me. When it was obvious that something was particularly funny or notable, I’d ask someone to tell me what happened, but mostly I had to be content with watching everyone else interact and accept the fact that I’m not going to know everything that happens anymore. I’ve been at that table many times with our family and I know the kind of laughter and banter that goes on. While it’s true that I was left out of the fun of what was specifically being said, I was able to mentally take a step back and truly just enjoy watching them interact and have fun. My joy came from their joy. It was one of many mental shifts I would have to make, but I realized that I was still a part of the family circle and there is still much joy to be found, I’d just have to find it in new ways.
I’ve only had a couple of “bad” days so far. The first was at the end of the first week. There was someone that had been having a rough day and I wanted to talk to them about things. When someone is talking about things that matter to them or things on their minds or hearts, you really don’t want to stop them and make them repeat things over and over again or “shout” them loudly enough for you to hear. You certainly can’t nod along in agreement if you are only getting the gist of the conversation – you don’t know what you are agreeing with! It was frustrating for me to have to try so hard…I wanted to be there for that person. We made it work, but it was discouraging for me. That evening was also a church night. I love being with my church family and right now it is my most challenging environment. When everyone is visiting before things start or afterwards there is a lot of background noise. My hearing aids amplify that along with the sounds I want to hear, so for me it is very loud. Combine that with the fact that my own voice is very soft and the natural instinct is to speak very loudly over the noise. Unfortunately, when I think I am making a point of keeping my volume lower to counteract that, I still apparently am being much louder than I realize. When a speaker is at the microphone, I can follow it with a great deal of effort if they are speaking directly into the mike. I don’t understand anything spoken in the audience. Singing is quite the experience. I’ve had to relearn singing several times over the years and have always relied on friends and family to help let me know when I’m getting it right and then once I get it, I’m ok. That’s proving to be much more difficult this time. I can hear the audience singing, but it doesn’t sound the way it used to. Have you ever been to a Vacation Bible School session where all the kids are together and singing songs at the top of their lungs? It sounds like shouting more than singing, (but it’s still wonderful to hear! ) That’s similar to how the singing sounds to me now. Sometimes being able to hear the song leader helps and sometimes it makes it harder for me to get the melody (remember, what I do hear sounds very monotone and mechanical). It sounds strange, because I know most of the songs we sing very well and I know most of the tunes very well, but it takes me a line or two before I quite get it in my head what the melody actually is now. I guess too many conflicting sounds that “muddy the waters” a bit before I find it. Add to that the fact that my own voice is so quiet and different and it’s challenging to find the right notes as well as the volume…..it’s tough. What also is hard about singing is that when I am singing at a volume that Chet tells me is normal for me, it feels like I’m not making an effort. I know that sounds strange, but we all know people that sort of go through the motions when they sing – their mouths are moving but there’s no real effort behind it and not much sound coming out. I have always been one to sing out and when I sing at the volume I should, even the amount of breath coming out of my mouth doesn’t feel like enough to me. I feel like I’m being one of those people who is only half- heartedly participating and I HATE that feeling. I know it’s not true (I’m actually probably make the most effort of anyone there), and I also know that ultimately I might just have to learn to “make a joyful noise” whatever it turns out to be, but I’m still hoping to find my way to being able to sing in the assembly in a more normal way. By the time class is over and I’ve worked intensely to follow as much of the lesson as possible, I’m truly wiped out mentally. It’s still good to be with everyone and I’m hoping this will get easier with time.
One real blessing in my life right now is my new CapTel (captioning telephone). We have it up and running now and it takes some getting used to, but it enables me to use the phone again and that is HUGE! There is an operator that captions everything that is being said (including the background noises….I got a caption that said (toilet flushing) on one call!!!! Still laughing about that. I never would have known… lol) There is a slight delay between the speaker’s words and what I see on my screen so it takes some getting used to but I am so thankful the technology is there!
I could keep going, but I’m afraid if I write too much at once no one will want to take the time to read, so I’m going to stop for now. I appreciate so much the encouraging words you have for me and the continued love a prayers. It makes a difference.
It really happened…
May 24: Late that night I walked in the door after a wonderful overnight getaway with my hubby, and hugged my 20-year-old son. I realized that I couldn’t hear what he was saying and that I couldn’t hear what my husband was saying either. I could tell there was talking, but it was faint and unintelligible. I’ve had issues with my hearing for a number of years, but I’ve always been able to hear my husband, Chet, and my son, Cody, fairly well even without my hearing aids . This was not good. I went to bed hoping it would be fine by morning. I’ve had “weirdness” with my hearing before and had it clear up. Hopefully that would be all it was. The next morning Chet and I sat down to have coffee and I couldn’t follow a single sentence of what he was saying…not even up close, watching his mouth and with him speaking very loudly and repeating things. I had that feeling you get when something serious has happened – not panic or upset. The eerily calm feeling you get when you know it’s serious. I realized that my life had just been changed in the blink of an eye. Chet called the doctor for me (my very specialized specialist!) and I was seen on an emergency basis. Sometimes when you have an episode of SSHL (please see my story page for an explanation of what this is) if you get treatment fast enough some hearing can be saved. I’ve never recovered any hearing once it has been lost even with aggressive treatment, but it’s always worth a try. I had a steroid injection directly into my eardrum and was put on a high dose of oral steroids, plus a controversial treatment of an anti-viral drug. The doctor wanted to “pull out all the stops” since this loss was so dramatic and clearly life changing. After the injection, I had to wait 24 hours to wear my hearing aids again. Without them, I am close to deaf. I hear some sound, but there is very little that I am able to decipher and make sense of. At that point, I honestly didn’t know if I would be able to hear anything even with my hearing aids in. The audiologist tried to adjust them to my new hearing levels at the clinic, but only as a stop-gap until the doctor decided to stop treatment and my hearing was considered stable. No fine tuning was done, just a basic “turn it up as loud as you can” adjustment. That first day I remained calm and I think mostly I just had to wrap my brain around the concept that this really did happen. I’ve known it was in the realm of possibility for a while now, but in the past I’ve had other symptoms that I’ve come to associate with these episodes of hearing loss and this time there was no warning at all. One moment I was fine, then next I was nearly deaf. I began to realize the implications of this change. I couldn’t hear the phone ring. I couldn’t hear my kids walk in the door. I couldn’t really understand anything, even up close and face to face. I couldn’t hear my own voice – it was very faint. The next morning we had a planned ladies’ activity at church. The time coincided with the window of time when I could try my hearing aids. One of my friends texted me and asked if I’d like to have lunch after the activity. I agreed, not knowing if I’d be able to have a conversation or not. I felt nervous about trying to interact with people, but I’ve always had a sense of adventure and that was the feeling I had on that morning, too. I’ll dive in and see what happens! If I’m too loud, we’ll have a laugh and someone will help me figure it out! We’ll play charades if necessary! Once I arrived at the church building, I put the hearing aids in. I could follow some conversation!!!! It was difficult and even when I could understand the words, the voices were very distorted. Have you ever seen a tv program where a kidnapper calls with his ransom demands and uses a voice scrambler of some kind? That’s what it reminds me of. The human qualities of the voice are mostly gone for me now. I feel like I’m speaking to a computer or machine all of the time. Occasionally, when I’m one on one with someone, I can distinguish a characteristic that would allow me to recognize whose voice it is, but mostly it’s very monotone, very distorted, and very mechanical. Surprisingly, initially there was no sadness or upset at all. I honestly felt a tremendous sense of gratitude! I really did. I was unbelievably grateful to God that I was able to follow some conversation and that the hearing aids did help, even though it was still very difficult to hear. I felt gratitude for the wonderful support system I have. I knew that my family and friends would do whatever was necessary to show me love and support during this time. I would not be alone and I was incredibly grateful for that. I found it easy to look at this as just a new path on the road of my life. I was put on this path and there was no decision to be made. I trust that God is in control and I have no qualms or anxiety about following the path I’ve been put on. It will be a good path full of blessings that I probably can’t even imagine right now. I’ve always prayed that God would use me however He saw fit, and I believe this is how He chose to answer that prayer. I don’t know yet how I will go about my work in the kingdom, but I know that I will go about it. I know that there will be a big adjustment time for me and my entire family. I know that there will be good days and difficult ones. I have no problem looking at the big picture and knowing that this is not a tragedy, only a change. I imagine that there will be a grieving period for what has been lost, but that will pass. I’ll figure out what technology is out there to help me function as well as I possibly can. I’ll learn sign language or do some formal training in speech-reading (formerly called lip-reading) or whatever it takes. I love to research things online and there is a vast amount of information and technology to acquaint myself with. It’s overwhelming at times to deal with so many new things at once, and it’s truly exhausting, but I will pace myself as needed (maybe even allow a nap or two!) and I will figure this out.